Greenbriar 3rd-grader Maya Ottenheimer experienced firsthand state government at work during the recent General Assembly session. Maya traveled with her father, Scott, and her grandmother, Karen Ottenheimer, last week to Springfield at the invitation of State Rep. Tracy Katz Muhl to help build awareness for a rare genetic disorder.

Maya, who is diagnosed with Williams Syndrome,  was standing side-by-side with  Rep. Katz Muhl as she introduced a resolution designating May as Williams Syndrome Awareness Month in the state of Illinois.

“After Rep. Katz Muhl read the resolution, everyone on the floor clapped, and then in Maya fashion, Maya yelled, ‘Everybody clap louder!’ That got a nice laugh and then even louder applause,” said Maya’s father, Scott Ottenheimer.

Maya also had the opportunity to meet many other legislators. “Our goal is to continue spreading awareness around Williams Syndrome and hopefully increase fundraising for research,” he said. 

According to the Williams Syndrome Association, Williams Syndrome (WS) is a genetic condition that is present at birth and can affect anyone. It is characterized by medical problems, including cardiovascular disease, developmental delays, and learning challenges. These often occur side-by-side with striking verbal abilities, highly social personalities, and an affinity for music.

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Below: Maya Ottenheimer cheerfully acknowledges the state resolution introduced by state Rep. Tracy Katz Muhl for Williams Syndrome Awareness Month along with her father Scott Ottenheimer. (Photo courtesy of Rep. Katz Muhl)